Archive for the 'Public Policy Forum' Category

I’m just back from a whirlwind week in Washington at this year’s Alzheimer’s Action Summit.  The Summit broke an attendance record as over 600 of us stormed the Hill yesterday.  There’s so much to report, but frankly I’m jet-lagged and more than a little sleep deprived.  So, I’m off to nap, but in the short term I want to [...]

Share the Light

Published Date: March 1st, 2010
Category: Alzheimer's Info, Public Policy Forum

In a few short days I’ll be headed to Washington DC for this year’s Alzheimer’s Action Summit.  When I was in DC at this time last year, the cherry blossoms were budding along the Potomac River.  After last month’s epic snow, I’m guessing I might need to pack a scarf and gloves for this year’s trip.  The [...]

A Historic Win

Published Date: February 11th, 2010
Category: Alzheimer's Info, Public Policy Forum

The entire reason I first became involved in Alzheimer’s advocacy is because when my family was in the throes of the disease we had the added stress of worrying about how to pay for my mother’s care.  Most of you likely know the saga but as a quick recap her insurance company denied her claim [...]

All Lit Up

Published Date: April 7th, 2009
Category: Alzheimer's Info, Public Policy Forum, Research

My apologies for neglecting the blog the past week.  It took the brunt of a week in DC and a bonus layover on the Denver airport floor.  Seriously, what are the odds of a spring blizzard in Denver? I’m all lit up from the Public Policy Forum.   More posts to follow about our federal priorities for 2009 and [...]

Join the March

Published Date: January 8th, 2009
Category: Alzheimer's Info, Public Policy Forum

The 21st annual Public Policy Forum is scheduled to kick off on March 23rd in Washington D.C.  With the upcoming inauguration, the atmosphere and environment on the hill this year is sure to be electric.  Not to mention, that this year the Alzheimer’s Association is stepping up our goal:  an advocate for every district in each state.  Now that’s sure to [...]

New Year. New Challenge.

Published Date: January 1st, 2009
Category: Alzheimer's Info, Public Policy Forum, Reading

2009 will bring a new challenge for me as I, yikes, officially re-enter the workforce.   It certainly isn’t that I haven’t been working for the past few years.  I’ve kept myself busy as a mom, freelance writer, marketing specialist, and volunteer for the Alzheimer’s Association.  But no, thanks to my Gemini roots, I harbor an [...]

The week is coming to a close, wet leaves, pumpkins, and political signs liter my front yard.  The leaves need raking, the pumpkins need carving, and I wish the political signs could be packed away today.  If only we could vote and move on.  Instead, Alzheimer’s research (like so many other important issues) will stall out until next year.  [...]

Five months and counting…

Published Date: August 17th, 2008
Category: Alzheimer's Info, Public Policy Forum

In the sweltering100 plus degree heat it’s hard to think about January, but inauguration day is a mere five months away.  Regardless of your personal presidential preferences, the new administration must enact a plan to attack the grave threat that Alzheimer’s disease poses to our country.  I know you’ve all heard me say this ad-nauseum [...]

Insuficeint Funds

Published Date: July 23rd, 2008
Category: Alzheimer's Info, Public Policy Forum

The Senate and House Appropriate Committees have both recently passed bills increasing NIH (National Institute of Health) funding.  The proposed funding for Alzheimer’s research is $662 million.  This represents an increase which basically adjusts for inflation but falls well short of the $125 million increase I was in Washington D.C. lobbying for.  Any increase in research dollars [...]

Six Sentences of Separation

Published Date: June 4th, 2008
Category: Alzheimer's Info, Press, Public Policy Forum

Forget six degrees of separation, there were only six sentences of separation from the future president and me today (okay well technically there were fourteen but six sounds better).  The Columbian ran a feature about the Ending the Medicare Disability Waiting Period that I spoke about in Washington D.C.  How great is it that the feature ran on the day after [...]